Millions of young people could miss out on new treatments because too few take part in medical research, experts say.
Analysis shows 18- to 24-year-olds make up 8% of England’s population but only 4.4% of medical trial participants, leaving Gen Z underrepresented in studies that shape future healthcare.
“Young people face unique health challenges, but most treatments are designed around older adults,” said Kirsty Blenkins of the Association for Young People’s Health. “That can make them less safe or effective for younger patients.”
Barriers include low awareness, lack of targeted recruitment, and concerns about privacy. The NIHR is urging more young adults to join trials through its national volunteer registry.
Dr Esther Mukuka, NIHR’s research inclusion director, said: “Research isn’t just about serious illness — it also improves everyday care for diabetes and mental health. Without young people’s input, treatments won’t reflect their needs.”
Experts warn that improving participation is essential to ensure new therapies are equitable, effective, and designed for everyone.
